Tag Archives: note

Kathryn’s Family Makes a Request

28 Jan

Kathryn

Kathryn’s latest status is below – I understand first hand just how much those cards, letters, and notes can mean. This is a child facing immense physical suffering, and a family faced with watching the child suffer and potentially die. The anguish for both parties is beyond description. It is a time when people feel helpless, afraid, and crushing grief at both the suffering and their inability to alleviate it. If you have a moment – please do send a card, if you have a minute write her a short note, and in you have a few minutes please write her a letter. You might also send a card or note to the whole family – letting them know that others care deeply about what is happening to them and offering what compassion and prayer that we can. No matter what the outcome, the most important things are to make sure that Katheryn feels loved and cared about, and that the family never forgets they are loved and not just held in the bosom of God – but by the arms of the Body of Christ. That last one means you and me.

Prayerfully,

Colin

*** REMINDER*****

A lot of you have asked to be called if we need your help in anyway!

HERE IS WHAT WE NEED FROM ALL OF YOU!!
Please do not count on someone else doing it!
I believe in the motto:

***** “IF IT IS GOING TO BE, IT IS UP TO ME!” *****

Please send NOTES, CARDS, HAND WRITTEN MESSAGES, and anything else that you think would help the family to the address below:

***** LETTERS/CARDS ********
All mail for Kathryn should be mailed to the following address:
KATHRYN GARDNER
857 Brownswitch PMB # 335
Slidell, Louisiana 70458

THANK YOU IN ADVANCE!!!

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UPDATE POSTED 01.27.2014 @ 11:30 PM

Kathryn and her mom Kathy arrived at the hospital this morning for her chemo treatment. Over the weekend she developed a cold and so was placed in a small isolation room for her treatment. Her Ferritin level last week had risen to 3200, they are down to 1800 but it is because she is back on the steroids.

Because HLH is so rare, it is very difficult to treat and doctors are having to come up with different ways to attack it. The family has asked you to join them in praying for her doctors that they will think “out of the box”. Today they were told she will be started on 2 new medicines.

The first she will start today. The doctor told Kathy the pharmacy may have to order it since most pharmacies don’t keep it in stock. But as soon as they get it, Kathryn should start it immediately. The second medicine is extremely expensive and has never been approved for HLH patients. The doctors have contacted the insurance company for approval.

The way Kathy explained it was that it is a spectrum disorder with many different levels that range from juvenile onset arthritis to MAS to HLH (roughly).The second medicine has been approved for MAS patients and Kathryn’s doctors are hoping that she will get the approval since HLH is in the spectrum of the disorder. It will take 2 weeks to get the approval.

Another blow today was that they found sugar in her urine and it”s most likely steroid induced diabetes. She will have to start a strict diet and possibly even insulin. Those of you who are bringing dinners, please take this into account and prepare meals accordingly.

Doctors also officially requested approval from the insurance company to have all 4 of the Gardner girls tested by a simple DNA mouth swab. This is the first of several steps in preparation, should Kathryn need a bone marrow transplant in the future.

Kathy says they are emotionally spent and feel like they hit a wall today with this new information. We must not stop praying. Kathryn did not receive this horrific diagnosis alone, the whole family is affected by it. In many ways that we can’t even imagine, they are all suffering. Let’s lift them up daily, all of them. Kyle, Kathy, Kassidy, Brayden, Kathryn, Kymberly, Kristine and Karlie. This beautiful family needs our prayers.

As I write this, we are facing another winter freeze. Many of us will honker down for the next couple of days. If you haven’t done so yet, take some time to write them a letter. Have the kids draw a picture or jot a note. It will let Kathryn and her family know they are not alone, we are all here for them.

REMINDERS:

***** LETTERS/CARDS ********
All mail for Kathryn should be mailed to the following address:
KATHRYN GARDNER
857 Brownswitch PMB # 335
Slidell, Louisiana 70458

Kathryn Finally Home – On Outpatient Chemo

6 Jan

Kathryn

All,

I wanted to make sure I passed on this latest update that Kathryn is finally home and doing outpatient Chemotherapy. It is truly a wonder to watch prayer work in the lives of others around you. It is a reminder of God’s love ,and in the inherent goodness of humanity. I hope that those of you who have prayed for her find great joy and reinforcement in of your faith in her recovery, as I do. When so many pray together the heavens are stormed, and when they pray in humility and God chooses to grant their request it is an amazing thing. Please continue to pray for her and her family, and remember that each of you had a part in both her survival and her recovery. Whatsoever you have done for the least of his people – THAT you have done for him.

PLEASE REPOST OR REBLOG AS WIDELY AS POSSIBLE  TO SPREAD THE WORD TO ALL WHO HAVE BEEN PRAYING.

With the Greatest Love – and Deepest Faith –

-Colin

POSTED 01.06.14 @ 8:29 PM.

Kathryn went back to the hospital for her two hour chemo treatment today and her body handled the treatment without any complications and she was able to come back home tonight. Her blood levels continue to improve. Kathryn will be doing these two hour chemo treatment twice a week for the next eight weeks.

Kathy will be meeting with Kathryn’s school teachers tomorrow to start setting up the home study program for Kathryn so that she can get back on track with her education.

If anyone can help with dinner for the family on Monday’s and Thursday’s That would be AWESOME. These are the two days each week that Kathryn has to go to her chemo treatment and it is an all day affair.

PLEASE CONTACT MARIANNE BELL @ 985.285.5359 SHE WILL BE COORDINATING THE MEAL SCHEDULE FOR THESE TWO DAYS.

Please continue to pray that Kathryn’s body can continue to handled all the chemo treatments over the course of the next eight weeks. The treatments are making her weak, but she is in good spirits, so your prayers are definitely working!!

THANK YOU FOR YOUR LOVE, SUPPORT, AND PRAYERS!!

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UPDATE POSTED 01.05.14 @ 9:38 pm.

GREAT NEWS!!!
The doctors have allowed Kathryn to come home today. Her blood level and her liver indicators are all starting to get down to normal levels.

She will have to go back tomorrow, Monday, January 6 ,2014 for a two hour chemo treatment again, but they are hoping that it will be as an outpatient only and that she will not have to stay in the hospital. She will then have to go back again on Thursday for another chemo treatment. For now the doctors are thinking she will have two chemo treatments a week for eight weeks.

During this time period her immune system will be very weak and vulnerable to any sickness, so please call the house before you just pop in for a visit, as the chemo treatment will be very exhausting for Kathryn.

PLEASE CONTINUE TO PRAY THAT KATHRYN CAN HANDLE THE CHEMO TREATMENTS AND THAT THEY WORK!!

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UPDATE 1.4.14 @ 9:18pm

The Gardner Family, want to thank all of you who were able to attend the prayer service last night as well as those who prayed with us from home. Kathy was overjoyed to hear us recount the details of the evening. Today Father Rareshide visited Kathryn! What a blessing! She was also visited by her sisters and cousins. I am sure that wore her out.

Kathy told us the most recent blood tests revealed that the liver enzymes are still going down and are now at 98!That is almost normal.
Her Ferritin level is down to 15,000 from 40,000.

Because these numbers continue to go down, it looks good that she will be able to go home tomorrow. Then she will have to return for outpatient chemotherapy treatments on Monday.

Prayer Warriors, she is not out of the woods yet. Kathryn still has a long way to go. We do know that GOD is on our side and He is definitely walking with Kathryn on this difficult path. Please continue to pray that Kathryn stays strong and her body will handle these treatments.

I encourage each of you to write her a letter or have your little ones draw a picture (her favorite color is purple) and mail it to her at the following address:

KATHRYN GARDNER
857 Brownswitch PMB # 335
Slidell, Louisiana 70458

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