Search results for 'kathryn'

Following up with Kathryn

5 Jul

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A while back I asked for your prayers to support Kathryn Gardner. Many of you responded enthusiastically. Kathryn survived against the odds and through great adversity and is finally on the mend. The picture of her above is with her mother recently. You can look back through my old posts to see how amazing her change in appearance has been. She is getting better, but still needs your prayers as she is having a very rough time emotionally with her recovery. This is something I have experienced personally. Please consider adding her to your prayer list for emotional healing and comfort through her continuing recovery. You can follow her on facebook here (G-Force is an organization locally put together to support the Gardner family through this tragedy)

https://www.facebook.com/groups/GForcePage/?fref=nf

Here is the latest update from her mother:

Happy 4th of July everyone. The Gardner Girls are back from their Texas Tour – they had a wonderful time. Thank you so much to our family and friends who shared their homes and time showing our kids a great vacation. Having her sisters home has greatly lifted Kathryn’s spirits. She has been in a “funk” as of late. You see, before the Bone Marrow Transplant Kathryn was just to sick to want to do anything. Her mental condition was compromised by all the medication she was on and suffered from what is called “chemo fog”, meaning she was not clear of thought. Her body was failing and she was so weak and sick that she did not want to do anything but sleep. She was very docile to whatever was asked of her – taking medicine, receiving her treatments, etc …. Now that we are peeling back on her medications and she is starting to feel better – the isolation and restrictions are warring on her emotionally. The “chemo fog” is gone – she is now clear of thought and the reality of her situation has hit. As the “fog” is lifted she has more time to think about all the restrictions she lives with. She now wants to go outside – like her sisters are, she wants to visit with friends – like before she got sick, she wants to go on vacation like her sisters did. She wants to go out to eat or to a movie or to swim – but realize that she can not. It reminds me that she is still a 14 year old teenager wanting to do normal 14 year old teenager things. As much as we remind her that this is all temporary – it is for now and it hurts her heart. We have been told that these feelings are all a normal part of the process and as the restrictions are lifted it will get better. Medically she is doing fantastic, but struggling emotionally at this time.
The first 100 days are considered critical post transplant – we are day 61, so we are 3/4 of the way there – this last stretch is a lesson in fortitude.

Thank you for sending the pictures – we enjoy seeing them. We thank you all for your prayers, well wishes, cards, donations and gifts. We pray daily for all of you – we pray a blessing back to all those who are praying for us.
At this point all we can do is pray and wait ….. Blessings to All, Kathy

Thank you all and God Bless,

Colin

3/30/2014 Kathryn Update (By popular Request)

7 Apr

I have had a large number of requests for further updates on Kathryn’s status. She is still in my prayers every day. She remains extremely ill and requires a bone marrow transplant from her youngest sister who is a compatible donor. The Gardeners and her doctors are getting her ready for that. The local community is also sponsoring fundraisers and events to try to help offset the crushing medical bills. You can follow it all on Facebook in near real time here:

https://www.facebook.com/groups/GForcePage/

Please keep her in your prayers – and join the group on Facebook to show your support (as well as see updates in real time)

Pax Christi,

Colin

** 3.30.14 ++++ MEDICAL UPDATE ++++

This past week has been a little rough for Kathryn. Since they are slowly taking her off of the steroids, she is feeling her body more and more. She is experiencing headaches, and all over body aches so much so that she switched beds with one of her sisters in attempts to get some sleep. That did not work. She is just feeling cruddy.

On Thursday, she received the 3rd of 5 shots of the new chemotherapy. Blood results showed that her Ferritin is back up to 540 but they were told that it may fluctuate some weeks. The blood results from Karlie have not come in yet.

On April 2, Kathryn will have to have 4 baby teeth pulled. Since dental work can pose a bacterial risk, they were waiting for her medical doctor to give her dentist approval for the extractions.

At a recent doctor’s check for Kathy, she was diagnosed with High Blood Pressure (HBP). She was given medicine and told to change her eating habits. She is supposed to record her pressure daily and go in for a followup appointment in 2 weeks. She told me that even on medication her daily pressure is 150 over 100. Unfortunately, caregivers all over are so frazzled, they forget to take care of themselves and this sort of thing can happen. Her eldest daughter, Kassidy who is an EMT, will be taking her pressure daily.

Starting in April, the Gardner’s will NOT need meals for Monday’s and Thursday’s because Kathy and Kathryn will be in the hospital for the bone marrow transplant. What they need during this time will be meals that can be frozen. Meals like Chili, Lasagna, Meatballs, Roast, Beef/Chicken Enchiladas, any type of casserole. Anything that can be defrosted and popped into the oven quickly. Again contact Marianne Bell the food coordinator @ 985-285-5359, if you can help in this area.

Kathy and Kyle have been Eucharistic Adorers for over 20 years. Kyle sits with Jesus every Friday morning from 3am to 4am. and Kathy sits every Saturday from 3am to 4am. While in the hospital with Kathryn, Kathy would like to have someone take her Saturday hour. The weeks we need covered are April 26, May 3, May 17, May 24, May 31, June 7, June 14, June 21, June 28. (9 weeks).

Please contact me if you can cover her adoration hour during this 9 week time frame. My cell is 985.502.6412.

Ideally Kathy would like 1 person to cover the first half of the 9 weeks then a second person to cover the last half. We are hoping that Kathryn will be home by the end of June and Kathy will be able to return to adoration then.

I hope that everyone is getting the word out about our big Dinner/Comedy Night on April 25 and 26 at St. Margaret Mary. It’s going to be a wonderful event and I can’t wait to meet all of you. Tickets go on sale April 1, and the G-Force T-shirts should be arriving by the end of this week.

Update for those Praying for Kathryn

9 Mar

kathryn

Kathryn

For those who have been following the saga of this one brave young girl and her family, I am hoping that reading this and maybe some of the prior posts for the backstory on my blog will help affirm in your hearts the power of prayer not just in our lives but in the lives of others. Kathryn is one of millions of young children who are suffering daily all over the world with life threatening illness. I have long realized that I cannot make a change for all of them directly, but by doing little things with great love for the one(s) God places before me I believe that I can make a difference. I am also hoping I can inspire others to do what they can to make a small difference in the hope that they too will inspire others. The end of which under ideal circumstances is an outpouring of compassion worldwide.

I’d like to thank all of you who have prayed, sent cards, notes, letters, and postcards of hope to this young girl. I am posting this update because she still needs your prayers and there is so much more ahead of her than there is behind her. Please keep her in your prayers, and remember that love and compassion are not finite resources – you can give all of each from a neverending supply, replenished by God himself.

Now the Update from the Gardner Family –

Last week for Kathryn went well. There were no real changes to report except that her 4 sisters did in fact go through the initial round of genetic testing. The Gardner family wish to send Praises to the heavens on the wings of the Father’s glorious holy angels that from her 4 sisters, they have found one match. Kathyrn’s little sister Karlie(5), is an EXACT MATCH. Praise God!! The test has 15 different markers, Karlie matched all 15 EXACTLY!

When the doctor told them the news Kathy simply began to cry. She heard very little of what was said after that. Kathy asked for a copy of the test to see for herself and she was handed a single piece of paper on which clearly matched the two girls. Kathy knew that the doctor was explaining to a couple of student doctors that when doing these genetic tests you hope to get as many markers to come close to the patients numbers. He was telling them how rare it is to get and exact match on the first try. Then Kathy interrupted and said, “What a beautiful Pro-Life testament!” to which the doctor responded, “Exactly!”

The family would like to thank all of you for your constant prayers and they ask that you lift Karlie up. They are asking that you specifically ask the Father to prepare her little heart for this procedure should we get to that stage. At this time, the doctors are just telling us that it is highly likely that we will have to get the transplant, so they are going to prepare Kathryn for it. They have not told us when this will happen or told us any details, just that it will probably happen at some point.

Prayer Warriors, we have been given great news today for Kathryn and her family. Parents Kyle & Kathy said that on one hand they are ecstatic that they found a match but on the other hand the donor is the youngest and the family is feeling the effects of that reality. In a family meeting today, each of the girls mentioned why she wanted to be the match for their sister. It was very touching.

Kathryn is feeling pretty blue these last few days. She is in a real battle and her little body is taking a beating. Join us as we continue to storm heaven with uplifting prayers for her and her family. Remember the family has asked that we pray for 5 yr old Karlie, that God will prepare her heart. Those of us who have the distinct pleasure of knowing this little firecracker, know that she always has the perfect answer for just about anything you ask of her. She is bouncy, full of life and can carry on an intriguing conversation with anyone and anything.

***KATHRYN’S EMAIL ADDRESS***
GForce2000.14@gmail.com

***** LETTERS/CARDS ********
All mail for Kathryn should be mailed to the following address:
KATHRYN GARDNER
857 Brownswitch PMB # 335
Slidell, Louisiana 70458

God Bless,

-Colin

Kathryn’s Family Makes a Request

28 Jan

Kathryn

Kathryn’s latest status is below – I understand first hand just how much those cards, letters, and notes can mean. This is a child facing immense physical suffering, and a family faced with watching the child suffer and potentially die. The anguish for both parties is beyond description. It is a time when people feel helpless, afraid, and crushing grief at both the suffering and their inability to alleviate it. If you have a moment – please do send a card, if you have a minute write her a short note, and in you have a few minutes please write her a letter. You might also send a card or note to the whole family – letting them know that others care deeply about what is happening to them and offering what compassion and prayer that we can. No matter what the outcome, the most important things are to make sure that Katheryn feels loved and cared about, and that the family never forgets they are loved and not just held in the bosom of God – but by the arms of the Body of Christ. That last one means you and me.

Prayerfully,

Colin

*** REMINDER*****

A lot of you have asked to be called if we need your help in anyway!

HERE IS WHAT WE NEED FROM ALL OF YOU!!
Please do not count on someone else doing it!
I believe in the motto:

***** “IF IT IS GOING TO BE, IT IS UP TO ME!” *****

Please send NOTES, CARDS, HAND WRITTEN MESSAGES, and anything else that you think would help the family to the address below:

***** LETTERS/CARDS ********
All mail for Kathryn should be mailed to the following address:
KATHRYN GARDNER
857 Brownswitch PMB # 335
Slidell, Louisiana 70458

THANK YOU IN ADVANCE!!!

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UPDATE POSTED 01.27.2014 @ 11:30 PM

Kathryn and her mom Kathy arrived at the hospital this morning for her chemo treatment. Over the weekend she developed a cold and so was placed in a small isolation room for her treatment. Her Ferritin level last week had risen to 3200, they are down to 1800 but it is because she is back on the steroids.

Because HLH is so rare, it is very difficult to treat and doctors are having to come up with different ways to attack it. The family has asked you to join them in praying for her doctors that they will think “out of the box”. Today they were told she will be started on 2 new medicines.

The first she will start today. The doctor told Kathy the pharmacy may have to order it since most pharmacies don’t keep it in stock. But as soon as they get it, Kathryn should start it immediately. The second medicine is extremely expensive and has never been approved for HLH patients. The doctors have contacted the insurance company for approval.

The way Kathy explained it was that it is a spectrum disorder with many different levels that range from juvenile onset arthritis to MAS to HLH (roughly).The second medicine has been approved for MAS patients and Kathryn’s doctors are hoping that she will get the approval since HLH is in the spectrum of the disorder. It will take 2 weeks to get the approval.

Another blow today was that they found sugar in her urine and it”s most likely steroid induced diabetes. She will have to start a strict diet and possibly even insulin. Those of you who are bringing dinners, please take this into account and prepare meals accordingly.

Doctors also officially requested approval from the insurance company to have all 4 of the Gardner girls tested by a simple DNA mouth swab. This is the first of several steps in preparation, should Kathryn need a bone marrow transplant in the future.

Kathy says they are emotionally spent and feel like they hit a wall today with this new information. We must not stop praying. Kathryn did not receive this horrific diagnosis alone, the whole family is affected by it. In many ways that we can’t even imagine, they are all suffering. Let’s lift them up daily, all of them. Kyle, Kathy, Kassidy, Brayden, Kathryn, Kymberly, Kristine and Karlie. This beautiful family needs our prayers.

As I write this, we are facing another winter freeze. Many of us will honker down for the next couple of days. If you haven’t done so yet, take some time to write them a letter. Have the kids draw a picture or jot a note. It will let Kathryn and her family know they are not alone, we are all here for them.

REMINDERS:

***** LETTERS/CARDS ********
All mail for Kathryn should be mailed to the following address:
KATHRYN GARDNER
857 Brownswitch PMB # 335
Slidell, Louisiana 70458

Kathryn Suffers a Major Setback (Jan 21, 2014)

21 Jan

Maria_Magdalene_praying
Kathryn has taken a turn for the worse. I know from personal experience just how dangerous and damaging the steroids are, which is why the doctors are desperately trying to cut them back  – but her body is also failing without them. Please consider sending a card or note to help bolster her spirits, and pray for the whole family. I have been both the one who was so sick and one of the family of someone so deathly ill. I promise you from personal experience that it is equally hard to be in either position as both leave you feeling helpless, frightened, and overwhelmed.  As a parent I can tell you , would be far easier for me if I could simply exchange places with that child – but alas we cannot. It is in these dark times that the only real comfort we have is our faith. When faced with darkness, it provides the light and hope from God that our souls need to find their way.  That faith is reinforced strongly by your cards, letters, and notes of support – they are candles in the darkness for this family and  they let this family know that they are not alone in their faith and that others are praying both with them and for them. Please take a moment from your day to say a short prayer for the comfort of the whole family – as Kathryn cannot help but to see the anguish in their eyes as they witness her suffering. Just a small act of compassion, done with great love, can do more to change the world than you may ever know.

Thank you ALL for your support,

-Colin

UPDATE POSTED 01.20.14 @ 10:57 PM

Prayer Warriors please join us in walking this journey with Kathryn and her family. It seems as though her body is not responding very well to the decreased doses of steroids.

Kathryn had a bad night last night. She has a low grade fever, which has to be watched very closely because it can spike very quickly. She has hip, knee, back and shoulder pain and needs help walking.

Kathryn was doing so well with her chemo treatments. She took a trip to Walmart and was even fixing her own snacks. Kathy told us she even had the strength to help straighten her room. The family was looking forward to spending some time together for the MLK holiday. After a rough night Kyle and Kathy brought her for her Chemo treatment this morning and received the news that her Ferritin levels are rising once again.

Kathryn did receive chemo today but with this news about the Ferritin, they were told not to come back for the Thursday treatment. Also, because the Ferritin levels are going up again and the fact that her body is reacting to the decreased steroids, the doctors decided to increase her steroids again until the Ferritin levels go down.

Kathy says that the cards and prayers Kathryn has received have truly lifted her spirits. She and Kyle are very grateful.

REMINDERS:

***** DONATIONS ******
KATHRYN GARDNER BENEFIT ACCOUNT
at any WHITNEY/HANCOCK Bank

***** LETTERS/CARDS ********
All mail for Kathryn should be mailed to the following address:
KATHRYN GARDNER
857 Brownswitch PMB # 335
Slidell, Louisiana 70458

THANK YOU AND KEEP THE PRAYERS COMING!!

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What’s Going on with Kathryn?

14 Jan

kathrynAll,

I have been deluged with requests for an updated status. Don’t think I’ve forgotten, she stays in my prayers every night and every day. Here is the latest as of this evening. She is far from out of the woods, but then again the doctors never thought she would make it this far! Prayer Works! Praise God!

Can I get an AMEN! – Then you keep right on prayin’ she still needs your prayers. Yes YOUR prayers.

Please SHARE this as WIDELY AS POSSIBLE – and keep those cards and letters coming! Words of encouragement are very important – and they let her know just how many are thinking of her and praying for her. Send her a postcard with a short note, have your kids draw her pictures, write get well on a napkin and put it in the mail to her.

-Colin

UPDATED POSTED 01.13.14 @ 10:58 PM.

Kathryn has done well so far with her chemo treatments. She had a chemo treatment today. They checked her blood levels again.

GREAT NEWS, her Ferritin level in her blood has come down to 2,500, it had gotten as high as 40,000. This level should be less than 200.

The doctors are very excited to see this improvement and explained that if at her next chemo treatment which will be this Thursday, January 16, 2013 it is below 1000, they will be able to cut down the chemo treatments to only one treatment a week instead of two chemo treatments a week.

The doctors have been slowly lowering the dosage of steroids she had been receiving. This will start to cause Kathryn to start feeling more of the effects of the chemo treatments. They have to start lowering the dosage, because there are negative long term effects if you stay on steroids too long.

Kathryn was able to attend noon MASS this past Sunday. She has been stir crazy being stuck inside all this time. It was great for her to be able to get out of the house for a little while, but she was exhausted afterwards.

As far as her schooling is concerned, Kathy (her mother) has contacted the school board and has gotten the ball rolling on that issue, she is waiting on a call back tomorrow with details as to how this will work.

The family needs your PRAYERS now more than ever. We pray that these treatments work and that GOD will grant her a COMPLETE FREEDOM from this disease!!

Things are definitely looking better now, but the doctors have warned the family that as they take her off the steroids, things may get worse before they get better. The doctors DO NOT want any of us to get a false sense of security. Kathryn is NOT out of the woods on this matter. SO CONTINUED PRAYERS ARE NEEDED.

REMINDERS:

***** DONATIONS ******
KATHRYN GARDNER BENEFIT ACCOUNT
at any WHITNEY/HANCOCK Bank

***** LETTERS/CARDS ********
All mail for Kathryn should be mailed to the following address:
KATHRYN GARDNER
857 Brownswitch PMB # 335
Slidell, Louisiana 70458

THANK YOU AND KEEP THE PRAYERS COMING!!

Kathryn Finally Home – On Outpatient Chemo

6 Jan

Kathryn

All,

I wanted to make sure I passed on this latest update that Kathryn is finally home and doing outpatient Chemotherapy. It is truly a wonder to watch prayer work in the lives of others around you. It is a reminder of God’s love ,and in the inherent goodness of humanity. I hope that those of you who have prayed for her find great joy and reinforcement in of your faith in her recovery, as I do. When so many pray together the heavens are stormed, and when they pray in humility and God chooses to grant their request it is an amazing thing. Please continue to pray for her and her family, and remember that each of you had a part in both her survival and her recovery. Whatsoever you have done for the least of his people – THAT you have done for him.

PLEASE REPOST OR REBLOG AS WIDELY AS POSSIBLE  TO SPREAD THE WORD TO ALL WHO HAVE BEEN PRAYING.

With the Greatest Love – and Deepest Faith –

-Colin

POSTED 01.06.14 @ 8:29 PM.

Kathryn went back to the hospital for her two hour chemo treatment today and her body handled the treatment without any complications and she was able to come back home tonight. Her blood levels continue to improve. Kathryn will be doing these two hour chemo treatment twice a week for the next eight weeks.

Kathy will be meeting with Kathryn’s school teachers tomorrow to start setting up the home study program for Kathryn so that she can get back on track with her education.

If anyone can help with dinner for the family on Monday’s and Thursday’s That would be AWESOME. These are the two days each week that Kathryn has to go to her chemo treatment and it is an all day affair.

PLEASE CONTACT MARIANNE BELL @ 985.285.5359 SHE WILL BE COORDINATING THE MEAL SCHEDULE FOR THESE TWO DAYS.

Please continue to pray that Kathryn’s body can continue to handled all the chemo treatments over the course of the next eight weeks. The treatments are making her weak, but she is in good spirits, so your prayers are definitely working!!

THANK YOU FOR YOUR LOVE, SUPPORT, AND PRAYERS!!

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UPDATE POSTED 01.05.14 @ 9:38 pm.

GREAT NEWS!!!
The doctors have allowed Kathryn to come home today. Her blood level and her liver indicators are all starting to get down to normal levels.

She will have to go back tomorrow, Monday, January 6 ,2014 for a two hour chemo treatment again, but they are hoping that it will be as an outpatient only and that she will not have to stay in the hospital. She will then have to go back again on Thursday for another chemo treatment. For now the doctors are thinking she will have two chemo treatments a week for eight weeks.

During this time period her immune system will be very weak and vulnerable to any sickness, so please call the house before you just pop in for a visit, as the chemo treatment will be very exhausting for Kathryn.

PLEASE CONTINUE TO PRAY THAT KATHRYN CAN HANDLE THE CHEMO TREATMENTS AND THAT THEY WORK!!

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UPDATE 1.4.14 @ 9:18pm

The Gardner Family, want to thank all of you who were able to attend the prayer service last night as well as those who prayed with us from home. Kathy was overjoyed to hear us recount the details of the evening. Today Father Rareshide visited Kathryn! What a blessing! She was also visited by her sisters and cousins. I am sure that wore her out.

Kathy told us the most recent blood tests revealed that the liver enzymes are still going down and are now at 98!That is almost normal.
Her Ferritin level is down to 15,000 from 40,000.

Because these numbers continue to go down, it looks good that she will be able to go home tomorrow. Then she will have to return for outpatient chemotherapy treatments on Monday.

Prayer Warriors, she is not out of the woods yet. Kathryn still has a long way to go. We do know that GOD is on our side and He is definitely walking with Kathryn on this difficult path. Please continue to pray that Kathryn stays strong and her body will handle these treatments.

I encourage each of you to write her a letter or have your little ones draw a picture (her favorite color is purple) and mail it to her at the following address:

KATHRYN GARDNER
857 Brownswitch PMB # 335
Slidell, Louisiana 70458

Kathryn Gets a Horrific Diagnosis – and Needs a Miracle!

31 Dec

katheryn

Everyone –

Kathryn has had some major setbacks in treatment – Please pray with us.

-Colin

UPDATED 01.01.14 @ 2:06pm.

Kathryn started the chemo treatment late yesterday afternoon. It was suppose to take 9 hours for first treatment. 40 minutes into the treatment Kathryn had an adverse reaction. Her fever spiked, her hands and fingers turned purple and her heart rate went up to 230 beats per minute. She yelled out in pain which awakened Kathy. The doctors immediately stopped the treatment. They got her settled down and were about to restart the chemo, when some of the results came in from an earlier spinal tap, indicating that she had a fungus growing on her brain. The Doctors had to stop all chemo treatments and immediately and start her on a round of antibiotics, which took 1.5 hours. After the antibiotics were administered, they re-started the chemo treatment at a lower rate late last night. The problem with the lower rate is that it will take 22 hours to administer rather than the initial 9 hours. She will have to go through 5 days of this type of treatment in the hospital.

As for the fungus issue, the doctors think it was in very early stages and it has been rectified.

The doctors have decided to do a liver biopsy today to identify what is happening with the liver.

The family is VERY STRESSED!! It seems that there is an obstacle at every turn and it is getting to them. PLEASE PRAY FOR STRENGTH AND COURAGE FOR THE FAMILY!!

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Everyone,

Katheryn has a diagnosis. I have included the infor from the family below. The news is heartbreaking – but in Christ there is always hope. Please keep her in your prayers. Have masses offered, send cards or notes of support, include her in your rosaries and novenas, and/or stop to remember her and that she is fighting for her life each day. Even the smallest actions done with great love will have a positive effect. Please do not forget her family – I know in their position I my suffering would be just as great watching the child suffer (I have been the one suffering in the hospital). I promise that every prayer matters – even small short ones. For many of us Christmas is not over – please continue Christmas by remembering her each day and offering a prayer on behalf of Kathryn and her Family with great love and compassion. Pray for her doctors as well.

Mark Shea offered the most eloquent prayer I think I have seen yet, and I am reposting it here for everyone:

Father, hear our prayer for her complete healing in body, soul, and spirit.  Give her caregivers grace, peace, wisdom, knowledge, understanding, skill, creativity, and the proper technology to assist in your healing work.  Give her and all who love her grace, peace, strength, consolation, faith, hope and love.  We ask this through our Lord Jesus Christ.  Mother Mary and St. Luke, pray for them all.

To everyone who has been praying, sent cards, notes, and even just kept her in their thoughts – thank you from the bottom of my heart.
Please Share or Repost this anywhere you see fit, church bulletin boards, prayer groups on social media, facebook friends, etc…

Yours in Christ –

Colin

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REMINDER FOR EVERYONE THAT WANTED TO SEND CARDS:

All mail for Kathryn should be mailed to the following address:

KATHRYN GARDNER
857 Brownswitch Road
PMB # 335
Slidell, Louisiana 70458

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UPDATE POSTED 12.31.13 @ 2:03 PM.

HELLO EVERYONE

The final diagnosis is that Kathryn has a very rare blood disorder. It is NOT Cancer, but it is treated in a similar matter.
She has Hemophagocytic lymphohistiocytosis (HLH)

Here is some info on HLH and a link for you to read more about the disorder:

“Hemophagocytic lymphohistiocytosis (HLH) is a rare but potentially fatal condition in which certain white blood cells (histiocytes and lymphocytes) build up in organs including the skin, spleen, and liver, and destroy other blood cells. This causes fever and damages the liver and spleen, resulting in enlargement of these organs. HLH may be inherited or it may be caused by certain conditions or diseases including infections and immunodeficiency (inability of the body to fight infections). It most commonly affects young infants and children.[1][2] Treatment includes antibiotics or antiviral medications to treat or prevent infections, and chemotherapy and immunotherapy prior to allogeneic hematopoietic cell transplantation”

LINK: http://www.histio.org/document.doc?id=243

The good news is that Kathryn’s doctor Dr.Rishikesh Chavan, MD was a resident in Houston and worked under two doctors that wrote the treatment protocol for HLH patients.He is the one that finally identified the disorder when all the other doctors were stumped.

Kyle and Kathy are seeing GOD’s hand in all of this, because if they had not gone to Tulane Hospital, they would never have had Dr. Chavan as Kathryn’s doctor.

Starting today, Kathryn will be treated with chemo over the course of the next eight weeks. The doctors will monitor her progress and how she handles this first treatment. then the decision will be made on how the following treatments will be handled. Whether they will require additional hospital stays or not during the eight weeks of treatment.

One of the biggest concerns, that the doctors have is that her liver enzmes are at 2,000 and they should be at 35.

SO PLEASE PRAY THAT THE LIVER STARTS TO REPAIR ITSELF TO AVOID PERMANENT DAMAGE OR THE NEED FOR A TRANSPLANT.

Also, we have been asked by many people if they can send donations in for the family. I am currently setting up a special benefit account at a local bank for Kathryn. I will update everyone once I have this done.

PLEASE GOD, ALLOW YOUR HEALING MERCY TO FLOW THROUGHOUT KATHRYN’S BODY!!!

Kyle and Kathy Gardner have asked us to continue posting updates for them on this event page to answer the questions that many of us have. This allows them not to have to field so many phone calls.

So I will be posting updates as they call us with any new information. If you would like, please contact us directly via FACEBOOK messaging and we will answer any questions of their behalf for now.

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UPDATE*** POSTED ON 12.31.13 @ 8:56am,

The Gardner family is meeting with the Doctors this morning to go over the treatment plan.

PLEASE PRAY FOR THEIR DISCERNMENT THIS MORNING!!

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Emergency Update on Kathryn 12/30 7:48 pm CDT

30 Dec

Kathryn

I Just received this. For everyone praying for Kathryn – thought you should know ASAP.

EMERGENCY UPDATE!!!!!!!!!!!!
POSTED ON 12.30.13 @ 7:48 pm

The Gardner’s received a call from the doctor about an hour ago and were told to immediately bring Kathryn back to the hospital. Her liver enzyme levels are elevated from the test they ran on some of the blood that was drawn earlier today. They want to get her back on IV medication and prep her for treatment immediately.

THE FAMILY IS VERY CONCERNED, PLEASE PRAY THAT KATHRYN WILL GET THROUGH THIS BATTLE!!!

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POSTED ON 12.30.13 @ 5:16 pm

Today the Gardner Family went back to the hospital to review the diagnosis and discuss the plan of action for Kathryn and here are the results of that meeting.

The doctor’s have identified want she has as:
Systemic Onset – Juvenile Idiopathic Arthritis (SO-JIA).

This is the umbrella diagnosis under which they are classifying this disease. There are a spectrum of different symptoms and additional diseases under this diagnosis, so the doctors took more blood today and are sending it off to Cincinnati, Ohio for some additional testing to confirm their findings as to what phase/stage Kathryn is in to start the proper treatment. They want her to return in 10 days once those results are in.

This disease has attacked Kathryn’s immune system and muscular system making her weak and susceptible to sickness, therefore she will not be able to attend regular school, so the family is setting up a home study plan with the school system for Kathryn to continue her education, this maybe for approximately four weeks and then maybe she can start back to school on a part-time basis.

PLEASE CONTINUE TO PRAY FOR KATHRYN!!

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REMINDER FOR EVERYONE THAT WANTED TO SEND CARDS:

All mail for Kathryn should be mailed to the following address:

KATHRYN GARDNER
857 Brownswitch Road
PMB # 335
Slidell, Louisiana 70458

-Colin

Latest on Kathryn (12/26/2013)

26 Dec

 

Kathryn and Santa Holding Hands

Kathryn and Santa Holding Hands

All,

My apologies for not getting this out yesterday. I left it sitting unsent in a browser window while I helped my wife finish up Christmas Dinner. Thinking I had already finished it, I didn’t get back to it until asked by a multitude of readers this morning. Thank ALL of you who reminded me, in doing so you also reminded me just how many people are following the plight of one little girl and her family at Christmas.

Kathryn and her family gave me a great gift this year in particular, especially for those struggling with the holidays. Christmas is not about YOU or ME, Christmas is that one short time each year when we celebrate the Birth of Christ – and in doing so try to emulate his love and compassion for all humanity in some way – with great love.

In answer to those who have asked, Cards and notes arriving late is not a problem – and NO she is not nearly out of the woods yet, the diagnosis has not been made nor has any long term treatment begun as yet. So continued prayers are very much appreciated. Here is the address for those who missed it earlier:

KATHRYN GARDNER
857 Brownswitch Road
PMB # 335 
Slidell, Louisiana 70458

Now onto the latest update approved by the family –

UPDATED INFO ON KATHRYN GARDNER !! SHE IS HOME FOR CHRISTMAS!!!

A PICTURE OF KATHRYN HOLDING SANTA’S HAND TODAY!

Okay, We have a lot of good information. First of all Kathryn was moved into her own room late yesterday evening. The Doctors have been monitoring she all night and this morning.

Kathryn had SANTA CLAUS visit her today with a huge bag of goodies.. THAT WAS AWESOME! But the best gift was that the Doctors gave the okay for her to go home tonight and spend CHRISTMAS AT HOME WITH HER FAMILY!!!

!!!!!!!!!! PRAISE GOD !!!!!!!!!!!!!!!!!

The medicine she is on is stabling her enough that the doctors feel confident in allowing her to go home for Christmas. She will have to return on Monday, December 30,2013 to start the treatment plan to treat the autoimmune disease she is dealing with. The doctors are still waiting on a couple of results to come back before they label the disease, so we are not out of the woods yet, but this is a great set in the right direction.

Due to Kathryn’s immune system being so weak, the Doctors have asked that she not be exposed to many people, especially anyone that may have a fever or is sick. I know many of us want to go by the house and visit, but Kathryn is still sick and and NOT feeling 100%. She is still very weak and tired and sleeping a lot.

SO PLEASE, IF YOU WANT TO VISIT:
PLEASE CALL THE HOUSE IN ADVANCE! PLEASE DO NOT JUST SHOW UP! SHE MAY NOT BE UP TO SEEING VISITORS AND BECAUSE THE DOCTORS HAVE REQUESTED THAT HER EXPOSURE TO OTHERS BE AS LIMITED AS POSSIBLE.

Please allow the Gardner family to spend some quiet time together as a family during this Christmas season.

PLEASE CONTINUE TO PRAY THAT THE TREATMENT WILL WORK AND PRAISE GOD THAT SHE IS ABLE TO SPEND CHRISTMAS WITH HER FAMILY!!!

I’d like to thank all those who have read about Kathryn, followed her plight, shared with their friends, and kept her in their thoughts or prayers. Each of us can make a difference in another persons life for the better.

Thank You and Bless You All!

Colin

Address for those Praying for and Thinking of Kathryn this Christmas Season

23 Dec

Kathryn

Many of you have been offering prayers for Kathryn over the last few days (See prior post). She is pumped being up on steroids to keep her stable right now and the Doctors are very much hopeful that test results expected this afternoon will enable them to make a proper diagnosis and begin treatment. That said, she is far from out of the woods. Her family is hoping very much that they will have her stable enough to move to a regular room by Christmas Morning. I have had more than a few requests for her address so that people can send cards and notes of support, encouragement, and prayer to help bolster her and her family in this difficult time – as well as to remind them of the grace of God – and that when any child suffers, we all feel it. Even those who do not believe as we do.

As someone who has spent a considerable amount of time in her position, those prayers and especially the cards and notes mean more than most people will ever know. If you are one of those who would like to send Kathryn or her family a note, prayer card, letter, a childs art, or christmas card I have attached the address below (with their permission). Allow yourself to be a part of making a child feel valued and loved not just by her friends and family, but by all of humanity. When we lift one of us up – all of us are lifted with them.

KATHRYN GARDNER
857 Brownswitch Road
PMB # 335
Slidell, Louisiana 70458

I’d like to take a moment to thank all of you who have and are praying, had masses said for her, who shared this blog or passed the word via social media, and all those of you who just took a moment out to remember her and/or her family during your day. Thank all of you in advance for sending her a note, card, picture, or other token of support.

This is a season for giving and I believe that it’s the small things done with great love, that have the most impact on other peoples lives.

God Bless and Keep you all,

Colin

PRAYER REQUEST FOR RONNIE M.

3 Apr

405524

I have a prayer request for everyone willing to stop for even a moment and say a prayer from Ronnie M.
Then please also say one for his wife Lisa, and their children.

Ronnie is currently in the ICU at St. Francis Hospital in Memphis, Tennessee. He has small cell Lung Cancer that has moved to his pancreas and he is currently on a ventilator which doctors cannot seem to wean him off. His family are being told by doctors that the situation is hopeless, but those who believe in Christ know that nothing is truly hopeless and they are staying with him and praying for him continually. They are hoping for a miracle to prove the doctors wrong, but willing to accept God’s will should he not recover.

As I have been in his position and survived,  and then recovered against all medical science; and since a young girl Kathryn who was in the same position and from my town was also prayed for – she recovered against all odds. We know that prayer works! In truth the family needs the prayers just as much. It is physically and emotionally exhausting to deal with a critically ill family member for weeks on end.

Today being Good Friday, it is a wonderful day to stop and pray for another – just as Jesus prayed for his executioners saying “Forgive them Lord, They know not what they do”.

If anyone feels inclined to offer some assistance to the overwhelmed family like feeding pets, or making meals, or just providing a human shoulder to lean on – by all means please contact me via email, Facebook, or comments here and I will pass your information to Lisa M.

Thank You in Advance for your Prayers!

Colin

Prayer Request for Katherine

20 Dec

Maria_Magdalene_praying

**** UPDATED CONTINUALLY – PLEASE CHECK BACK TO SEE LATEST STATUS IN ORDER OF RECEIPT *****

Everyone,

“Our Dear friends’ beautiful 13 year old daughter, Katherine, is in the pediatric ICU tonight with a sudden and unknown illness. She checked into the local hospital on Wednesday morning but today was transferred to a major hospital in the city as initial attempts at identification of the cause and treatment failed and her condition continued to worsen. Doctors originally were thinking viral meningitis, but that has now been ruled out.  This wonderfully faithful family needs a miracle tonight!  Thanks in advance, and God bless.”

I just got this message tonight regarding a beautiful young lady I know personally. I realize that all of your are not Catholic or even Christian, but the Lord hears all prayers. Please lift her up in you prayers tonight, even if it is for just a short moment to close your eyes and ask God to watch over her and/or heal her. You may never realize the difference prayer can make. I have experienced it personally and am making this request of you because I know firsthand what a difference every single prayer will make. With the human doctors stumped, only the divine physician can truly help her. If you are not sure what or how to pray – I have included my own personal prayer for her below.

Dear Lord,
I beg you to watch over this child and care for her, I humbly request that your grant her physicians skill and wisdom, her nurses fortitude and caring, and her parents faith and hope. May you please send angels to stand guard at her bedside, and the Holy Spirit to envelop the family and bring them what peace and hope they are able to accept.
Amen.

God Bless You All, and most especially please bless Katherine –

Colin

UPDATE ON KATHRYN

katheryn

Kathryn made it through last night!

Kathryn’s fever is still up and down. The rash she had is starting to clear up with the steroids. Additional X-rays were taken overnight. We should start getting test results back today on all the tests that were ran yesterday. Doctors have already been in this morning making more evaluations on symptoms and progress.

Kathryn is opening her eyes and can speak in short words when the oxygen mask is removed.

The family wanted to pass along how thankful they are to all of you for your continued prayers and support. Please continue storming the gates of heaven with your prayers!!

****** THANK YOU & MAY GOD PROVIDE US STRENGTH ******

POSTED ON 12.21.13 @ 1:02PM

UPDATE ON KATHRYN (From her Family)

The doctors are doing a Bone Marrow sample today. It will be a bit tricky because of the pneumonia and fluid in her lungs, but it is needed to find out what is causing all these issues.

She is starting to get some color back in her skin and is starting to talk in more complete sentences. Kathryn was asking questions like

” Where am I”
“Can I go to the bathroom”

She is smiling and can now raise her arm to touch her face.These are all good signs!! But the main concern is what is causing all of this and will it happen again.

More updates to come as we are made aware of them. Thank you for your continued prayers!

UPDATE ON KATHRYN:

POSTED ON: 12.21.13 @ 6:18PM

Bone Marrow sample has been done, due to the weekend and the holidays the results will not be in until Monday, December 23, 2013.

Kathryn had two of her sisters visit with her today. (Kassidy & Kimberly). They had an AWESOME visit. Kathryn was smiling and laughing with them. Symptoms seem to be improving but all of the results that have come back from the test so far are all showing up negative, so we still do not know what has caused all of these issues.

The doctors have advised Kyle and Kathy that they will be in the hospital until after Christmas. Hopefully if Kathryn continues to improve they will be able to move her out of the ICU before Christmas.

POSTED ON: 12.22.13 @ 12:16PM

***** AN UPDATE ON KATHRYN ******

Good Morning Everyone

As the test results start coming in, the Doctors are starting to narrow it down to what is causing these symptoms. The Doctors have determined that we are dealing with an autoimmune disease, they have narrowed it down to five that it could be, but they are waiting on the results from the bone marrow sample to officially label it. The bone marrow testing results will not be in until Monday afternoon at best.

So here is where we are, Kathryn is on a very high dosage of steroids at this time. This is making her comfortable for now. The Doctors have done this until they can identify what disease they they are dealing with. Once the disease is identified then they will start the proper treatment. As they begin the treatment they will back down on the steroids and pray that the treatment starts working or all the symptoms would return.

The plan is to have the disease identified on Monday and start treatment, if it does well than maybe move Kathryn into a regular room sometime on Tuesday or Wednesday. SO WE PRAY THE TREATMENT WORKS ONCE THE DISEASE IS IDENTIFIED!

Many people have asked about visitation. At this time ONLY IMMEDIATE family may visit one at a time because she is in ICU.

When she gets into a regular room you can make plans to visit her. I also was asked about making cards for her, I think that is an AWESOME plan. I would tell those individuals that are interested in doing that, to go ahead and start, so that the cards would be ready for when she its into the regular room, we pray that it is before Christmas Day, but there are no guarantees on that.

If she is in her regular room for Christmas, the family plans on having Christmas as a family in her room, we pray that will be the case.

***** AS SOON AS WE KNOW WHEN SHE WILL BE IN A REGULAR ROOM I WILL POST IT IMMEDIATELY!! ******

Please continue to pray for a proper identification of the disease and for the treatments to work once they are started early next week.
MAY GOD BLESS YOU FOR ALL OF YOUR LOVE AND SUPPORT!!!

Your thoughts and prayers ARE MAKING A DIFFERENCE!

Bless you all,

Colin


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