Kathryn’s Family Makes a Request

28 Jan

Kathryn

Kathryn’s latest status is below – I understand first hand just how much those cards, letters, and notes can mean. This is a child facing immense physical suffering, and a family faced with watching the child suffer and potentially die. The anguish for both parties is beyond description. It is a time when people feel helpless, afraid, and crushing grief at both the suffering and their inability to alleviate it. If you have a moment – please do send a card, if you have a minute write her a short note, and in you have a few minutes please write her a letter. You might also send a card or note to the whole family – letting them know that others care deeply about what is happening to them and offering what compassion and prayer that we can. No matter what the outcome, the most important things are to make sure that Katheryn feels loved and cared about, and that the family never forgets they are loved and not just held in the bosom of God – but by the arms of the Body of Christ. That last one means you and me.

Prayerfully,

Colin

*** REMINDER*****

A lot of you have asked to be called if we need your help in anyway!

HERE IS WHAT WE NEED FROM ALL OF YOU!!
Please do not count on someone else doing it!
I believe in the motto:

***** “IF IT IS GOING TO BE, IT IS UP TO ME!” *****

Please send NOTES, CARDS, HAND WRITTEN MESSAGES, and anything else that you think would help the family to the address below:

***** LETTERS/CARDS ********
All mail for Kathryn should be mailed to the following address:
KATHRYN GARDNER
857 Brownswitch PMB # 335
Slidell, Louisiana 70458

THANK YOU IN ADVANCE!!!

##############################################################################

UPDATE POSTED 01.27.2014 @ 11:30 PM

Kathryn and her mom Kathy arrived at the hospital this morning for her chemo treatment. Over the weekend she developed a cold and so was placed in a small isolation room for her treatment. Her Ferritin level last week had risen to 3200, they are down to 1800 but it is because she is back on the steroids.

Because HLH is so rare, it is very difficult to treat and doctors are having to come up with different ways to attack it. The family has asked you to join them in praying for her doctors that they will think “out of the box”. Today they were told she will be started on 2 new medicines.

The first she will start today. The doctor told Kathy the pharmacy may have to order it since most pharmacies don’t keep it in stock. But as soon as they get it, Kathryn should start it immediately. The second medicine is extremely expensive and has never been approved for HLH patients. The doctors have contacted the insurance company for approval.

The way Kathy explained it was that it is a spectrum disorder with many different levels that range from juvenile onset arthritis to MAS to HLH (roughly).The second medicine has been approved for MAS patients and Kathryn’s doctors are hoping that she will get the approval since HLH is in the spectrum of the disorder. It will take 2 weeks to get the approval.

Another blow today was that they found sugar in her urine and it”s most likely steroid induced diabetes. She will have to start a strict diet and possibly even insulin. Those of you who are bringing dinners, please take this into account and prepare meals accordingly.

Doctors also officially requested approval from the insurance company to have all 4 of the Gardner girls tested by a simple DNA mouth swab. This is the first of several steps in preparation, should Kathryn need a bone marrow transplant in the future.

Kathy says they are emotionally spent and feel like they hit a wall today with this new information. We must not stop praying. Kathryn did not receive this horrific diagnosis alone, the whole family is affected by it. In many ways that we can’t even imagine, they are all suffering. Let’s lift them up daily, all of them. Kyle, Kathy, Kassidy, Brayden, Kathryn, Kymberly, Kristine and Karlie. This beautiful family needs our prayers.

As I write this, we are facing another winter freeze. Many of us will honker down for the next couple of days. If you haven’t done so yet, take some time to write them a letter. Have the kids draw a picture or jot a note. It will let Kathryn and her family know they are not alone, we are all here for them.

REMINDERS:

***** LETTERS/CARDS ********
All mail for Kathryn should be mailed to the following address:
KATHRYN GARDNER
857 Brownswitch PMB # 335
Slidell, Louisiana 70458

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